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General characteristics of selected studies.

Journal: Journal of Medical Internet Research

Article Title: The Minimum Data Set for Rare Diseases: Systematic Review

doi: 10.2196/44641

Figure Lengend Snippet: General characteristics of selected studies.

Article Snippet: Pastores et al [ ], 2007 , The MPS I registry: design, methodology, and early findings of a global disease registry for monitoring patients with mucopolysaccharidosis type I , Cohort , International.

Techniques: Biomarker Discovery, Software